When you have a very energetic child and you begin to notice their balance
is off when they walk or run, it catches your attention. Thinking it was
normal kid stuff, being in a hurry, it didn’t register at first. Then while at a
baseball practice, we noticed Jon’s left arm was hanging to his side when he
came in from the field. It was Jon’s left side that was affected. The
following day Jon was seen by his pediatrician, who referred us to
a neurologist, a CT scan was done and we were given the results, Jon had a
brain tumor. This all happened within an hour. We were told to take Jon
to CHOC in Orange, he was admitted and our journey began, one no
parent wants to be on. The diagnosis of DIPG requires one to have
strength, trust and confidence in God, oneself, and the doctors.
Jon is such a great kid, full of energy, and loves to tease his sisters, Haley,
who is 14 and Erica, who is 10. He pretty much rules the roost! That being
said, Jon is a friend to all. He attends Wilson Elementary School in Corona,
CA and is in the first grade, Jon is 6 years old. When you ask his
classmates what they like best about Jon, they will say that he makes them
laugh! Jon is a great helper too, always ready to be a friend to those who
Jon is bilingual, he speaks Japanese! Arisa, Jon’s mama is from Japan and
Jon has visited Japan several times to see his grandma, grandpa, auntie and
cousins. He loves to travel and is always ready to go!
Jon loves to have fun! He enjoys building Lego’s with his sister and mom,
playing video games with dad, playing baseball and roller hockey with his
friends. Jon also loves to ride his bike, swim, and shoot his bb gun
(supervised of course) at Papa’s. Spending time at Grandma’s is fun too
because they read bible stories and go to church.
Jon is a blessing to all of us and those he meets, no one is a stranger, he
shows love to everyone.